Disease Knowledge and Readiness for Transition in Adolescents with Sickle Cell Disease in Jamaica and the United States (North Carolina): A Comparative Study
May 15, 2017 - September 30, 2017
Sickle Cell Disease (SCD) is the most common genetically inherited disease that affects millions of people world-wide. Characterized as a blood disorder, SCD has a range of phenotypic variability that results in wide spread disease presentation. Advances in treatment have resulted in an increasing amount of children living into adulthood, making this a chronic, lifelong disease. Transition into adult care has different frameworks across various regions. In Jamaica, there is one facility with access to all types of providers. In the United States however, there is a distinct division between pediatric and adult facilities.
How adolescent care is managed has implications on the array of issues that arise, including self-care, coping, and readiness for independence. The research goal for this project is to provide a comparison between the two systems that exist for treatment of adolescent patients with SCD in Jamaica and the United States. This will done by assessing differences and similarities in the readiness of adult treatment and their understanding of disease knowledge and management through administering questionnaires and conducting in depth interviews with adolescent sickle cell.