Healthcare Provider Education to Reduce Epilepsy Care Disparities in Uganda

Picture of BASS Team on Zoom.

Project member(s):

  • Pratamesh Ramasubramanian
    Olivia Ratliff
    Tyler Johnson
    Antoinette Charles
    Colby Newson
    Wyatt Gildea

Faculty mentor:

  • Dr. Deborah Koltai, Dr. Neil Prose

Community partners:

  • Dr. Angelina Kakooza

Healthcare Provider Education to Reduce Epilepsy Care Disparities in Uganda

Project overview

Epilepsy is one of the most common (and most treatable!) neurological disorders in the world, yet three in four people in low and middle income countries do not receive care that they need. In Uganda, this treatment gap is further exacerbated due to stigma, widespread beliefs in non-biomedical etiologies and treatments for the condition, and other barriers which prevent or dissuade individuals from seeking and receiving care. Furthermore, severely limited specialized personnel resources means that those who do seek biomedical care are often treated by non-specialty providers, who are often undertrained to care for and communicate effectively with epilepsy patients. 

Given these challenges, our goal is to bolster the mastery of epilepsy treatment for non-specialized providers by designing a culturally specific and sensitive epilepsy education course. Our program will draw from the WHO’s Mental Health Gap (mhGap) education modules with modifications made to reflect the specific setting based on interviews with Ugandan providers, availability of certain treatments, and consultation with the Ugandan National Health Guidelines. Additionally, we hope to integrate into our training materials the wisdom of these Ugandan providers regarding effective patient-doctor communication, particularly in the sensitive domain of epilepsy care. 

Project poster

Project notes

Reflections from Participants

Dr. Koltai: “Many people assert the need for cultural competence, making it sound like something that can be mastered. Instead it seems the key is cultural humility combined with empathic curiosity that will yield connection, respectful understanding, and effectiveness.”

Dr. Prose: "The creative ability of a group of thoughtful and motivated students, at different points in their educational paths, working together, far exceeds what I had imagined possible."

Colby Newson: “Working with this Bass Connections team has proven very complementary to the education I have undergone as a medical trainee. I’ve gained critical thinking and problem-solving skills that have allowed me to approach new challenges with curiosity and innovation. This team has also provided me with a space to grapple with important topics like cultural competency, communication, and partnership that are critical as an aspiring physician. My favorite aspect of our work this year has been our group’s deep dive into patient provider communication. As a group, we’ve worked to put together a manual on patient communication for Ugandan providers involved in epilepsy care. I’ve had the opportunity to learn so much and I’m grateful for the insights and perspectives that come from being a part of such a diverse team!”

Olivia Ratliff: “Given the impact of national policymaking and infrastructure on the epilepsy treatment gap and patient outcomes, the commitment of the Ugandan Ministry of Health to improving epilepsy care is critical. In terms of the long term sustainability and scalability of our efforts, collaboration with the MoH is our endgame. We started this project with hopes of developing education materials to run a single pilot program; we now find ourselves in a supportive role for a national campaign of increased education, awareness, and care capacity. It surpasses my wildest expectations for the reach of this intervention, and I couldn’t be more excited.”

Wyatt Gildea: “This program has illustrated the importance that culturally-sensitive communication has in international projects. Without understanding our partners in the context of their own culture, we wouldn’t have made half the progress we did.”

Antoinette Charles: "As a student on the Bass Epilepsy team, I learned about the importance of prioritizing our international partners' needs and working as a backbone to help push and support initiatives when implementing projects. It will ultimately have a broader impact on the community because our collaborators are more familiar with navigating the infrastructure, knowledgeable on the resources, and provide insight into cultural beliefs."

Tyler Johnson: "As an aspiring physician, one of my biggest takeaways from our BASS Epilepsy project has been the importance of patient-provider communication. It is essential that providers act as reflective listeners when engaging with their patients in order to create an environment where both parties feel valued and understood, ultimately leading to joint decision making and improved outcomes.”

Pratamesh Ramasubramanian: “Bass Connections has equipped our team with the skills to develop my knowledge in the field of Global Health and build the competencies to work across cultural lines, ultimately allowing us to understand the diverse mechanisms needed to create meaningful health reform in international settings.”

Last updated on June 26, 2023